The 2014 Central Susquehanna Valley Heart Walk
Saturday, September 13, 2014
Vayda Anne Evans
2014 Central Susquehanna Valley Child Chair
Vayda was born on 4/24/12 and all seemed great. The next day we were told they had detected a murmur and that there was a cardiologist here to check her out. After about an hour with the cardiologist to what seemed like forever he came back with the news she had Tetrology of Fallot and would need open heart surgery between three and six months of age. What was the best time of our lives turned into heartache for our precious baby girl. We chose to go to the Children’s Hospital of Philadelphia where they confirmed the diagnosis and were prepared to do the OHS. We had a few trips there prior to her surgery along with seeing our local cardiologist and they determined to do her surgery on 9/10/12.
The day of the surgery was the hardest day of our lives handing our almost five month over to have open heart surgery, this is something that we will never forget. Her surgery was a success and the staff at the hospital was specular giving us updates very frequently throughout surgery.
Although this is something that could be detected prenatally it was not in our case and I assume for a reason. We never realized until having to go through this how many children are affected by congenital heart birth defects and anything we can do to help someone through this experience and spread the importance on heart health we will continue to do. Vayda is doing great and now and is on yearly rotation with her cardiologist. At this point in time it does not seem that Vayda will need another surgery, but she will be monitored yearly throughout her entire life.
What is tetralogy of Fallot (TOF)?Tetralogy of Fallot has four characteristics:
Ventricular septal defect (VSD) - There is a hole between the two bottom chambers (the ventricles) of the heart that eject blood to the body and lungs. Overriding aorta - The aorta, the large artery that takes blood to the body, is on top of both ventricles, instead of just the left ventricle as in a normal heart .Pulmonary stenosis - There is a narrowing of the pulmonary valve, the area below the valve, or the pulmonary arteries, which carry blood from the heart to the lungs. Hypertrophy - The right ventricle becomes thicker and more muscular than normal as a result of working harder to pump blood through the narrow pulmonary valve.
The American Heart Association is the largest voluntary health organization working to prevent, treat and defeat heart disease, stroke and other cardiovascular diseases. These diseases, the Nation's No.1 and No.4 killers, claim more than 813,804 American lives a year. Thanks to all our walkers, donors and volunteers who have accepted the challenge to help fight heart disease and stroke. We cannot achieve our mission without each one of you!